Lymphoedema United – You are NOT alone!

Lymphoedema stories from around the world

Compiled by Amy Rivera & Matt Hazledine


Lymphoedema affects millions of people around the world, yet it is often a lottery whether the appropriate level of healthcare is received. That can leave a person living with this lifelong disease feeling desperate, neglected, and alone.

You are NOT Alone!

Advocates Amy Rivera and Matt Hazledine are joined by 34 people living with lymphoedema from 14 countries around the world, who share their personal experiences and top tips, to help you to live better with lymphoedema.

We pledge to support lymphoedema charities around the world, by donating a proportion of the annual pre-tax profits from this book, which we hope will continue for many years to come.

Thank you for purchasing our book. We hope you find it helpful. If so, please recommend it to others living with lymphoedema.

How to Purchase


Paperback available to buy from WordzWorth publishing, Amazon and all good online bookstores. Cost £25.00


A proportion of profits will be donated to Lymphoedema charities around the world.

Drop the Skirt

How My Disability Became My Superpower

by Amy Rivera


Discover the transformative power of resilience and courage in "Drop the Skirt - How My Disability Became My Superpower," an empowering memoir by Amy Rivera. This remarkable book takes you on Amy’s personal journey with primary lymphedema, showing you how to turn life's challenges into your greatest strengths.


Why This Book Will Change Your Life

Amy Rivera’s story is one of resilience, courage, and transformation. Facing primary lymphedema, she turned a lifelong challenge into a source of strength, becoming a powerful advocate for awareness and care.

Through raw honesty, Amy offers hope and motivation, showing that adversity can lead to extraordinary achievements. Her journey encourages growth and empowers readers to see their own challenges in a new light.

What You Will Gain

Inspiration & Strength: Be inspired to embrace your challenges as Amy shares her path to resilience.

Community & Support: Connect with a story that reminds you you're not alone on your journey.

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